Placebo vs Nocebo, Or Simply Buy The Ticket, Take The Ride?

 

Most of us are more than familiar with the concept of a Placebo/Placebo Effect – that sugar pill effect or the overriding belief that we are doing or taking something (sometimes a course of action) which will let us overcome, recover or heal completely, often seemingly against all scientific or reasonable odds.

 

Origin of placebo :

Latin, I shall please

 

Yes, we hear it often in health talk on TV, on the internet & in conversation often harshly administered out to any holistic or natural means of medicine, or healing (by a profit driven set-minded pharma-industry funded health profession) so that it sinks in like a mantra to the collective mind. These same scientific/medical minds are unable to either explain the phenomenon, yet they are happy to harness its power occasionally, or even take credit for anyone who effectively, and subconciously heals themselves!  

What about the ‘Nocebo Effect’? Well it’s kind of the other side of the coin which oddly enough the medical industry doesn’t conciously understand either :

Origin of nocebo :

Latin, I will be harmful

Nocebo – a detrimental effect on health produced by psychological or psychosomatic factors such as negative expectations of treatment or prognosis. E.g. when patients taking medications experience adverse side effects unrelated to the specific pharmacological action of the drug. The nocebo effect is associated with the person’s prior expectations of adverse effects from treatment as well as with conditioning in which the person learns from prior experiences to associate a medication with certain somatic symptoms.  

 

 

InspirationalQuotes.Club-endless-possibilities-belief-system-inspirational-wisdom-unknown

 

So that is the surface of it in modern medical terms, we don’t look further than that because there is no explanation in ‘Our’ terms. Full stop.

But what about the concious mind? The subconcious or unconcious? What about the superconcious mind? Well anyone familiar with the metaphysical or healing modalities or therapies that are based on an understanding of the human body, mind & soul may NOT see the body as scientific medicine does (i.e. as a bio-machine to be manipulated chemically from afar).

The good healer, acupuncturist, Bowen therapist, Hypnotherapist or Cranial Sacral therapist or whomever will have a belief in their patient’s healing & an outcome which will assist their subconcious belief that they will benefit from treatment, that it WILL help them to recover in unison with other life changes. Science says No – keep taking the pills & have blind faith in our system. How do we decide then – Placebo or Nocebo?

Well some of that is down to our conditioning & upbringing, the fist six years of life where we pick up all our beliefs about how the world is, what we get used to feeling & believing. At this age our brains operate mainly in Theta wave patterns which is highly impressionable, & then after age six we have more fixed beliefs, the programming of mainstream education comes in then filling up the left-brain with the need to conform to a world-view led by science & profit…

 

 

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…And BANG! You’re sold one way or the other… Or, you awaken gradually to the possibility that you are more than just a meat-bound robot that they’d have you believe & you go into your right-brain to explore all possibilities of creativity within yourself & beyond yourself – which can include miraculous healing through assisted belief.

This however does not condemn any of us one way or another; quite another thing affects our choices in thinking a treatment or drug will – the superconcious mind. This is the greater part of us energetically, what some call our Soul or Spirit or higher-self. Again science have ridiculed this ever since they set about their war on religion & spirituality many centuries ago. Our superconcious is in tune with our choices for this lifetime (our Karma) and what we chose to enter this reality to learn about beforehand.

Do we choose things because they’re easy? Well if we wish to grow that has to be an easy No. So is your belief about your PCS diagnosis what your Dr confirmed you would experience? Do your expectations of how fast & how well you will heal depend on another professional in a white coat with various certificates on their wall? I hope not.

To be fair I even got caught up in the whole medical Nocebo for quite a while, putting blind faith in big brand names like Cymbalta, Diazepam, Mirtazipine & the rest; yet all the while I became sicker & less able to function in life. I knew the drugs would not heal me the more time went on, and then my life crashed uncontrollably & I lost everything, became homeless & hopeless. My belief did not re-emerge until things became so bad that the only way was upwards.

 

 

De-Conditioning-the-Conditioned-Mind

 

 

And so my story mirrors many hundreds, maybe thousands of others who had one or more mTBI, and I’m just a little bit further down the line than most of those others – and so are many of my peers whom work alongside me in these efforts. For them (and they know who they are) I give them my thanks, my belief & my faith wholly & unconditionally – no placebo required…

…Like so many others – I bought my unique ticket, and took the ride.

 

Keep your choice to heal positively fixed & learn to believe in what is good & what can heal you, not what profits only someone else.

 

Namaste

 

David

 

 

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PCS, Homelessness, Drugs & Self-Medication in the UK – A Recipe For Disaster…

As we follow on the theme of recent articles it’s time to open a few taboo subjects, regarding the links between brain injury & societal problems like self-medication & crime, particularly in younger people whom seem to be the butt of public anger (if you believe everything bad you hear that is). The studies which the British Psychologists’ Society carried out show that the links are being discussed in professional circles; no more blanket dismissal or denial which have been so common in recent years, but a genuine willingness to start tackling the issues as inter-related rather than just random signs of a intangible social problem in the UK as a whole.

We know that currently there is predominantly only medication based interventions on offer through most NHS Drs, GPs & Neurologists (I exclude the word treatments as it is not generally appropriate to treat or try cure PCS with medications except as part of a carefully planned holistic approach – something not seen in the UK) so this takes us down a bit of a rough cul-de-sac in terms of tackling the wider problem. A blind alley even where anyone suffering the worse effects of post concussive illness could end up misdiagnosed for years, over-medicated, increasingly ill, distressed, unable to cope & even under psychiatric care (rather needlessly at that!).

The current chain of events often leads younger men & women to either large quantities of anti-depressants, tranquilisers, pain-killers like Dihydrocodeine, mood stabilisers & other strong medications that are often having the ‘zombie-effect’ on them, taking these has the added problem of depersonalisation in many cases; a sense of detachment unwelcome indeed. Alcohol is nearly always in the mixture too as an affordable & easily obtainable form of substitute to coping, its effects mix in with the prescription drugs & often is accompanied by so called ‘street drugs’ such as cannabis, cocaine, heroine, amphetamines & MDMA etc. This dangerous cocktail is more common than people realise, in fact the odds of being caught up in this rise dramatically due to homelessness as cheap drugs are readily available in most communities rural or urban.

How do we know all this? Well its happening all around us; in London, Birmingham, Manchester, Leeds, Hull, Sheffield, Bristol & everywhere in between! Even teenagers as young as 13 or 14 & upwards are victims of PCS & use inhalants, marijuana & medications to self-medicate. Crime stats show rises in drug & alcohol related crime, we don’t naturally take the brain-injury-factor into account when the figures are analysed. Even more distressing is the woeful lack of money spent on support or projects to tackle these issues, most of which is often way too late. Many end up in long term psychiatric care, prison, young offenders institutes or worse taking their own lives due to drug-related problems. I lost a few accquaintences myself who had issues which they couldn’t deal with & the people meant to be helping them were pretty clueless & often dispassionate about their demise & passings.

 

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So what do we need to turn things around? Well lets have a cross-discipline cooperation between health, law, psychology & support professionals; give them proper facts & training in the realities of the long-term problems that even mild traumatic brain injuries (especially repeat injuries) can cause, lets see a public awareness campaign to tackle the stigma of brain injury in the UK & most of all lets stop blaming the victims & start helping them, no matter how far down the pit of social decline they may be… Then we can talk about rehabilitation once the truths have been confronted & not swept under any carpet available.

 

In another article we’ll look at some individual cases to see where the failings are commonly found in our systems & comment on how change is possible. Thanks for reading again….

 

David Bottomley – August 20th 2014

Psychologists Recognize The mTBI Injury to Crime Connection…

We’ve seen how each different country has reacted in response to the evident ‘Concussion Crisis’, what we term also as the ‘Hidden Epidemic’ that has come more markedly to our attention during the last few years; in the USA it started from high-profile issues in contact sports such as NFL, Soccer & Baseball – in Canada the Hockey leagues were the catalyst for discussion – yet in Britain (Scotland to be precise) something far more important & maybe less obvious is occurring (except to those whom know little about mTBI & Post Concussive Illnesses) which could change the face of youth detention in the UK forever…

 

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…Its apparently the discussion which is taking place regarding the links between young criminal re-offenders & Brain Injury. It seems quite evident on examination, as we know most PCS sufferers are younger males normally of lower social position/standing & that in general less than 10% of them will ever be seen at hospital, an even more minute percentage will ever receive any help at all. Hence its not tough to see from my own point of view why a lot of these young men & women would be getting into trouble as PCS does often give the predisposition to ‘Self-Medication’ & makes the sufferer generally very intolerant to acceptable social demands, that in turn can lead to incidents & therefore arrest & conviction.

I knew a guy during my own time spent on the streets some years back, he had had 6-7 head injuries which he simply shrugged off as unimportant, he drank to excess, took lots of stimulants & also robbed houses (so he claimed & he had the proceeds of such..) so it did ring true that a lot of those who are struggling badly at the bottom rungs of society (Westminster terminology!) have it tough from all angles; they cannot get assistance & so they sink into troubled ways. It’s most definitely not any of our business to judge, but rather to try understand.

Here’s an excerpt from the British Psychology Society’s article:

According to Dr Jean McFarlane, joint chair of the British Psychological Society’s Division of Neuropsychology, research has shown people are more likely to reoffend if they have a traumatic brain injury.

As a result, she believes more needs to be done to identify high-risk individuals when they are being screened in prison, as this would prevent crime from being committed and reduce the number of re-convictions.

Dr McFarlane will present her argument in front of the Justice Committee which will hear evidence from academics and psychologists about how offenders with traumatic brain injuries can be identified.

Research by Professor Huw Williams of the University of Exeter has already demonstrated that about 60 per cent of male prisoners have experienced head injuries at some point in the past.

He said this is connected with earlier, more violent and persistent offending, which means it is “vital that we screen and manage such problems in offenders”. Professor Williams added that picking up on brain injuries more effectively could steer children and young people “away from a future of crime”.

 

continuumofcare

 

 

It’s reasonably clear to hope & assume we’re entering into a new era of societal changes in attitudes towards people with brain injury, not just in the socially acceptable arena of life but in areas of long-standing social issues such as crime, homelessness & social exclusion of those suffering from any type of ABI. The changes & subsequent reform could take years to integrate into policy & practice, the attitudes of the public will be hard to repair due to the vast tidal-wave of anti-youth & crime-fear type stories which litter our daily news & press, however if the authorities can get the media on side we may see the steady growth of understanding where only blind prejdudice &  scaremongering used to prevail.

 

We’re going to look at how PCS in particular effects those on the wrong side of the law in other articles soon. Thanks for reading…

 

David Bottomley – August 2014

 

 

Excerpts from BPS website read the full article here : http://www.bps.org.uk/news/bps-members-attend-justice-committee-hearing-scotland

Concussion Discussion (Finally) Comes To The UK!

And so with one major objective firmly framed in our sights (that of having a discussion of any sort here in Britain regarding the subject of concussion) we hold our breath, in pained hope that something, anything will now change in regards to national attitudes, medical procedures and treatments pathways being created within the NHS, the acceptance of MTBI as a real problem and of course the law?

We’ve already seen the conclusions drawn by Chris Bryant’s recent inquiry which condemned the Football Association, calling for action – the recommendations go right into the heart of the matter seemingly touching on the subject of concussion in school sports, yet is that enough without greater changes in law?

The inquiry findings were as follows: “There are four key recommendations. The first is that a single set of concussion protocols is introduced across all sports. It notes that current protocols are “often confusing, filled with jargon and generally inaccessible to the average parent” and that there is a lack of consistency across all sports. The Football Association is singled out because it “does not have any formal concussion protocols in place”. The second recommendation is that more independent, peer-reviewed research is conducted into the links between concussion and the disease chronic traumatic encephalopathy, which is what Astle suffered from. It states that “far too often national governing bodies focus only on what is immediately in front of them”. It points out that at the time of Astle’s death the FA “promised his family that they would undertake a 10-year joint study alongside the Professional Footballers’ Association to investigate the link between heading footballs and the risk of brain damage” but that 12 years on no such study has been published. This, the report implies, is tantamount to a “cover-up”.

Thirdly it identifies “a pressing need for a large-scale and continuous public awareness campaign” with “the clear message that concussion can kill”. It cites the Guardian’s articles on the death of Ben Robinson and quotes Ben’s father, Peter, as saying: “There should have been a chain of health and safety procedures in place, one that included players, coaches, referees and parents. If just one link in that chain had worked as it should have, Ben’s concussion would have been spotted. He would have been removed from the pitch, and he may have survived.” The report states that “there are many misconceptions about concussion” which must be corrected, and quotes the former England rugby captain Lewis Moody as saying that too often the issue has been “treated like a joke”. Finally it calls for more coordination between sports, schools and the NHS. It recommends the introduction of concussion training at amateur and school level, run in conjunction between the national governing bodies, NHS and Department for Education.”

 

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Seems fine yet it also begs the question – ‘What about those already suffering from years of concussive hell, who will stand up for them?’ We already know that most cases of MTBI go undiagnosed (unlike more severe TBI & STBI which are generally always hospitalised) or even misdiagnosed for years and that has a bigger strain on our health services and primary care services because it is unaddressed.

I think it will take us much longer to get to the heart of the matter, yet each news story echoing what happened in the USA is a huge help. We can learn much from the American example indeed, though we have essentially the same or similar concerns, our British approach will most definitely not be as embracing or empathic due to the previous lack of discussion on PCS & MTBI. Let’s keep awareness up through Facebook, Blogs, Twitter and…. Well anywhere online really, and we can help with this important task of birthing a wider understanding here in England, Scotland, Ireland and Wales.  I shall be following up this post with more details but for now keep tuned in.

By David Bottomley Aug 2014

 

PLEASE JOIN IN THE DEBATE BY GIVING YOUR VIEWS IN OUR POLL BELOW…..

 

The link below is the reference to the news article outlining the story as reported in the Guardian newspaper in June :

CLICK HERE TO read the Full Guardian newspaper article on the outcome of this British inquiry…

 

 

 

 

 

 

A Potted History of Post Concussion Syndrome (a Very Misunderstood Condition…)

 

For many hundreds of years the effects of what was previously called ‘Mild Head Injury’ (what we now know as Post Concussion Syndrome) were completely misunderstood, it was treated widely as a type of madness in special hospitals, sanatoriums and even as a form of madness in lunatic asylums!

It wasn’t until the 19th century that significant changes in general attitudes to mild head injury occurred. This was due mainly to the beginning of the industrial age and significant scientific progress of society at that particular time; the inception of the railways and advancements in the study and medical research of neurology had brought many revelations, some of which cast new light on this age-old problem.

In 1866 a Danish born surgeon called John Eric Erichsen was working in London when he published his important paper on the effects of mild head injury symptoms which were widespread among railway workers. Until this time he had lent his own name to the condition (Erichsen’s disease) which he described as a ‘molecular disarrangement to the spine’. This was at a point when modern litigation began to rear its ugly head for the first time in relation to health matters and disputes between individuals in our society, and many legal defendants sought evidence, to deny the reality and existence of the particular condition known as railway spine (or railroad spine as it was known in America).

Erichsen boldly proposed that the condition was a real phenomenon, often affecting manual workers whose task was that of the laying and construction of railway tracks (hard and demanding physical labour in an age before modern machinery).

He theorised that the repeated shocks from sledgehammer blows was causing a repetitive jarring of both the spine and brain in these workers over some period of time. This same problem and its effects could also be found in passengers who were victims in railway shunts and accidents (he observed them to be similar to those of whiplash); hence the legal arguments in court cases produced counterclaims from defence lawyers that what was known as railroad or railway spine was a figment of these claimants imagination in order to obtain monetary gain!

 John Eric Erichsen   

Erichsen went on to gain favour later in his career as Queen Victoria’s surgeon and was also made a Baronet and a member of the Royal fellow of surgeons whilst working and living in London. The unfortunate premise of counterclaims against the reality of railway spine as a valid condition has unfortunately stuck to this day, thanks to the growth in the need for legal litigation throughout the 20th century.

One wonders if circumstances had been different regarding the early controversy with the railways, whether there then would have been any doubts whatsoever regarding the realities of Post Concussion Syndrome today. Quite possibly not!

During the early years of the 20th century what was originally called Erichsen’s disease and then railway spine became more commonly known as the condition called shell-shock. During the First World War it became an epidemic amongst soldiers on both sides of the conflict. What is more precisely known today as Combat Stress Reaction was very common during this period in history.

It was found that even soldiers without any visible head or physical injuries were suffering from very similar symptoms and effects to those who had suffered actual brain injuries on the battlefield.

Because of the strong elements of psychological and mental disturbances which accompanied shell-shock, there was once again plenty of adversity surrounding those unfortunate soldiers who suffered with it in World War I. This was in an age before modern psychiatry, psychology and knowledge of post-traumatic stress; therefore many such soldiers were persecuted and even prosecuted by their own superiors, labelled as traitors and cowards! Military records from the time show that several thousand soldiers were put on trial during this period mainly for their so-called cowardice, and a few hundred of those unlucky souls were also executed following court-martial as a result. This misunderstanding further deepened the divide between benevolent medical science and the suspicious disbelief of the legal profession, which continues in some form or another to this very day. To test this theory one only need to perform a quick search of the Internet for legal opinion on PCS to find either badly written studies funded by and for legal firms denying its actual existence as a real, debilitating neuropsychological disability; or hundreds of no-win no fee adverts from companies wishing to help PCS sufferers in suing anyone who may be responsible for their injuries! But that’s enough lawyer bashing for now… (Oops, can I actually say that?)

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During the Second World War the term ’shell-shock’ was banned by the British military authorities in order to avoid further hysteria regarding an epidemic, yet problems continued again as a direct result of ground troops in open combat, however as another generation of brave young men made the ultimate sacrifice for their countries there was more of a required move towards the beginnings of the development of modern psychiatry. The term ‘post-trauma concussion state’ was coined in 1939 by military doctors to replace the term shell-shock and describe what we now call PCS. Still many veterans of war suffer those horrific mental scars from horrors of battle, and further wars around the world most significantly in Korea, Vietnam and in recent history the Middle East have created third, fourth and fifth generations of men and women who’ve suffer from the effects of acquired brain injury sustained in battle.

As a result of battle related PCS many military studies on neuropsychology have been undertaken, and have greatly contributed invaluable data and statistics which can be used in the future to help develop further treatments for PCS. Through the many thousands of souls who have sacrificed their lives in these wars has come much important discovery about the treatment and rehabilitation of PCS sufferers, something which otherwise may not have been achieved over the last century.

In fact my own grandfather Alfred Bottomley was a victim of shell-shock during his own service in the Second World War after being thrown from his motorcycle by an enemy explosion nearby. Despite his injuries and resulting vision problems he carried on in the service for several years before being honourably discharged and was a decorated soldier in recognition of his bravery and sacrifice. Sadly my grandfather was never quite the same again afterwards according to his family.     He passed away whilst I was very young and I never got to know him personally, the condition dramatically altered his life and had a direct impact on his own family life as a result. This book is also dedicated to his memory and to that of all who have suffered PCS under its many different names down the years.

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This leads us to the current day situation regarding PCS, our perceptions of this condition as an invisible illness/hidden disability and still what is seen as a very complex and much misunderstood subject. Today we seem to be in the early days of an important transition with PCS. Old attitudes and centuries-old conflicts over the status of PCS as a real and debilitating condition are being contested, challenged and changed by the very people who know most of all how utterly life changing and frustrating living with PCS can actually be… Yes that’s right. Ourselves! Of late there has been a gradual wave of action spreading east from the USA, where the problem surfaced into the public mind due to problems in NFL, Baseball, Hockey & Soccer; these ranged from kids being concussed on school playing fields to high-profile NFL suicides due to repeated concussive issues. The resultant fall-out eventually found its way into world football’s arena during the 2014 FIFA World Cup, something which then had a domino-like effect into the UK & Europe. So we stand on the brink of more encompassing set of social changes now in the 21st century.

With most other severe, chronic illnesses and disabilities the driving force in our modern world is widely based on the perspectives and opinions of the patient/sufferer, as much as it is on medical opinion and thought.                     Somehow with PCS this is not the case at all the case, even now after a century and a half of debate and controversy, primarily because of its misunderstood nature and changing forms of its definition, we can find little satisfaction with the current state of affairs. For many years PCS has been wrongly labelled as a mental illness, something which has increased the stigma already surrounding brain injury. We now know more about this neurological disorder than ever before in history, however the big cop-out which most of us face repeatedly every day, both from our health services and health professionals is a well-known set of excuses. The excuses are based on simple misunderstandings and general ignorance regarding the condition itself. How many more times will sufferers have to listen to the same excuses before we realize that it is simply an attempt to pull the wool over our eyes? Well not so long in reality as many people are growing in awareness and refusing to accept excuses and waffle in place of their basic patients’ rights!

Here are some of the excuses which you are likely to hear on a regular basis from health service doctors and physicians: “PCS is untreatable!” – Untrue, “There are no treatments available which are effective!” – Untrue, “We do not know enough about PCS yet!” – Untrue, “We can only treat some symptoms!” – Untrue, “There isn’t enough evidence that PCS is a real illness!” – Untrue or (my particular favourite) “We do not have the money available to treat PCS!” – Ridiculous (especially for a society that spends somewhere in the region of $400 billion a year on drugs)… And the list goes on, and on, and on to a point whereby you could substitute anyone of a dozen different excuses, all used as reasons to cover up the truth. So exactly what is true? Well money is always a motivating factor, such as the $490,000,000 paid recently in NFL to players; that must have a bearing on how the UK & European countries reacted to the 2014 FIFA World Cup issues highlighted in Brazil? Well, whatever the motivation it is clear that the time has come to end denial & silent suffering for many, many thousands each year.

Evidence from my eight years of intensive and personal research into PCS all lead to the same conclusion, this being that there is a widespread aversion amongst medical professionals and healthcare providers in Britain in general towards seizing the mantle and tackling PCS due to the scale of the problem, and their commercial loyalties to the pharmaceutical industry play a part. There is seemingly a silent fear of healthcare professionals admitting that, not only have they been wrong about so many aspects of the condition and its treatment in the past, but also that there would have to be an almost complete re-learning of what they already know from limited medical textbooks. Nobody will publicly care to admit that they truly do not know how to tackle a specific condition like PCS.

Indeed if we consider the scale of pharmaceutical usage in modern health care, then we can see yet another aversion towards the treatment of PCS, as it is well-known amongst experts that continued medication of the condition is nearly always linked to a deterioration of the PCS patient’s condition and health. Medication is King in modern health care today and our health service’s medical textbooks are mostly written by the pharmaceutical companies who profit from this arrangement. It’s not that I am opposed totally to pharmaceutical types of medication as it has its vital place in preserving health and saving thousands of lives every day; however its uninformed and indiscriminate overuse or misuse with regards to PCS can have tragic and even lethal consequences also, such as negative drug reaction, dependency, addiction and overdose. It is a sad fact that there are more deaths each year from overdoses of prescription medications than those of illegal drugs!

There is a traditional proverb in Japan which fits the bill perfectly; which states that “When the only tool you possess is a hammer, then everything starts to look just like a nail!” That is certainly true of the science driven pharmaceutical industry and its customers in the healthcare world. Doctors, physicians and health care professionals when qualifying are usually required to undertake a commitment to what is called the ‘Hippocratic oath’, this has been heavily modernized and changed from the original yet still requires all such professionals to make honest and ethical their treatment of patients, ‘Primum Non Nocere’ – to first do no harm (in other words not to make the condition worse) and to treat their patients as a whole beings, not simply just as a symptom or a collection of symptoms!

All this seems quite contradictory to what we’re being told; yet when we take into account the current ethos of plying PCS sufferers with as many strong medications as possible during their crucial period of recovery; it seems to make sense that the overall motivation is seriously wrong if the health and welfare of patients is the number one priority. It’s not a mystery at all when we look at the true facts which are available, using them simply to join the dots together, we can see that expert advice and opinion on PCS is being ignored in favour of profit. I have had much confirmation expressed within the comments and opinions of doctors and physicians far and wide regarding this problem. So many have admitted to the same feeling of being trapped within a culture of pharmaceutical overkill in regards to patient’s treatment and care, and yet this situation is not about to change whilst profit and big corporations continue to hold political and financial sway over our own public health care systems!

I have regularly and publicly challenged our own NHS in England to review their lack of available treatments for PCS sufferers, to develop treatment pathways similar to those which are available for other types of chronic illness and to provide better patient care and information on a wider scale. To this date I have never received a coherent reply or clear acknowledgement in response other a couple of than vague or short dismissive statements, and excuses similar to the usual ones given to patients. If like me you are facing PCS with the prospect of being treated on our National Health Service then you will be very well aware of what a frustrating and often fruitless journey this truly can be!

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Patients have two main choices currently, either to follow the pharmaceutical and psychiatric merry-go-round until they fall off through sheer dizziness and despair OR they can educate themselves and take informed choices as to what is truly best for their recovery and rehabilitation, but still accept some help and intervention from the NHS in a measured and selective way. A third more idealistic way of treatment is still very much a thing of the future here and we need better models for treatment and rehabilitation, such as those devised at the University of Buffalo in the USA, a program designed especially for athletes and sports-people and based on a regime of physical exercise and rehabilitation. This approach combined with cognitive therapies and the consultation of a Neuropsychologist has proven to work. All the leading experts, the likes of Michael A.McCrea, Dr Micky Collins, Dr John J.Leddy and others are setting new benchmarks in terms of research into recovery, effective treatments and new models for diagnosis. We could use these new models throughout the world.

Recovery tends to come in plateaus with regards to PCS, first there appears to be a levelling out of symptoms and a feeling of temporary improvement in certain areas of the sufferers’ symptoms. This is quite a common occurrence with PCS recovery which can be mistaken in the early stages and can be quite frustrating and confusing also. Some sufferers will come through a plateau in their recovery and then suffer a knee-jerk reaction when symptoms recommence, actively seek more medication as a result and then harm their own recovery in doing so.

Simply being aware of such aspects of PCS is invaluable knowledge and as any long-term sufferer will readily tell you; there are no better alternatives to the major recuperative factors of time, rest and an adapted lifestyle to aid rehabilitation which are equally essential and without substitute. If you or your loved one have not been through this before, then the first few weeks and months are potentially the most difficult and frustrating, usually without guidance, common pitfalls can be encountered and mistakes can be made regarding recovery.                                       This is the type of information that you’re not going to find at your average GP or family doctors surgery, also getting referrals to neuropsychology specialists can be difficult or even impossible depending on your status and where you live! What is lovingly and jokingly referred to in the UK as the postcode lottery.

I firmly believe that being forewarned about the unique complications of PCS and getting treated is to be in an advantageous position when it comes to deciding how your own recovery will be determined. By staying positive and becoming educated you can avoid the frustrations that many have encountered through years of going round in circles with the wrong types of treatment, medication and referral.

When Did Our Food Lose Its Nutritional Value? It Did Right?

Okay remember the good old days when your parents used to tell you ‘You Better well eat those greens and the liver and onions or you’ll never grow up to be big and strong!’?
Well that’s probably an exaggeration but it was something like that surely? Back when I was a kid everything from fresh meat to vegetables and our daily bottles of milk were fresher than fresh and gave us all the essential nutrients we needed to grow big and strong.

As I grew older the world became accepting of something called GMO (Genetically modified organisms) What in simple terms meant that some anonymous guy in a whitecoat somewhere had messed about with its genome to make it more marketable and fresh for the corporate world that was to follow!
Hormones are fed to animals on a daily basis along with a large selection of pharmaceuticals, Growth injections and other unsavoury shots of chemicals… The resultant now is food which looks also more appealing in its supermarket packaging and is even better value for money too.

Well the point I want to get to is that for us with PCS (and all of you with other invisible illnesses) Is that for us to maintain a healthy diet it has become essential for us to supplement ourselves with vitamins, minerals and other supplements which are now more readily available as a result of this vast change in our food processing methods of recent years.

The ancient Egyptians used to take large amounts of magnesium in their daily diets mostly from fresh dark green vegetables, Something which led them to have a cancer rate which was practically zero! Today the use of minerals and vitamin supplements is widely disputed by the medical profession and it’s corporate sponsors in the pharmaceutical industry.
As someone who spent five years taking a variety of pharmaceutical medications for my PCS and fibromyalgia I can say that making the switch from the lifestyle of readily available prescription drugs to a change in diet and a balanced selection of nutrient supplements has actually allowed me to get my life back.

For instance I was taking antidepressants for my problems with symptomatic depression and anxiety related to my PCS. Now I will take a daily selection of high-strength vitamin B (a variety of the vitamins such as folic acid, Biotin and B-12 Amongst others); For my lack of sleep previously I would take tranquillisers and sleeping pills daily with all their heavy side-effects, now I take of Valerian tincture when I cannot sleep and a daily supplemental dose of magnesium malate..
For issues such as general immunity to common colds, viruses and so on there was no particular pharmaceutical drug of choice however I discovered colloidal silver, good daily doses of zinc and superstrength vitamin C In addition to my daily portions of fresh fruit and vegetables (always organic now!)

So I could go on for a while and give you more examples but it is I believe a sign of our modern societies attitudes towards food, health and well being that we have sacrificed certain values for things which seem more real and convenient?
I would not advocate anyone to drastically change their diet or medication without first studying long and hard the options available to themselves! All changes should be passed or verified by either a qualified nutritionist or someone of similar stature, maybe holistic practitioner would be able to see all of the options which may be more suited to the individual?

With all of the new food scandals appearing almost like clockwork these days it is all too easy to be complacent about the food and the nutrients which we are putting into our bodies, sadly despite all the warnings it does seem that many of us are happy to continue with old habits. I would recommend to anybody who has a serious interest in discovering the truth behind our food industries to seek out a book called ‘Not On The Label’ & If you are feeling particularly adventurous you could also find a copy of ‘The Seeds Of Destruction’ by F.William Engdahl, Both of which will cause you to think long and hard about the types of food you buy and eat.

You may ask yourself after reading those who am I to judge all this? Well I am someone who knows from many years of having had PCS and been to the pharmaceutical mill and then spat out the other side that good nutrition and good organic food is essential! I have struggled and suffered from poor quality nutrition and overly strong and unhelpful pharmaceutical medications for years before I went back to basics and rediscovered the simple truth that my parents had told me all along….

Mum knows best folks & her cooking can usually prove it too!
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“The history of GMO

[genetically modified organisms]

was inseparable from the political history of the Rockefeller family, and the four brothers–David, Nelson, Laurance and John D. III–who, in the three decades following American victory in World War II, the dawn of the much-heralded American Century, shaped the evolution of power George Kennan referred to in 1948.

In actual fact, the story of GMO is that of the evolution of power in the hands of an elite, determined at all costs to bring the entire world under their sway.

Three decades ago, that power was based around the Rockefeller family. Today, three of the four brothers are long-since deceased, several under peculiar circumstances. However, as was their will, their project of global domination–“full spectrum dominance” as the Pentagon later called it–had spread, often through a rhetoric of “democracy’ and was aided from time to time by the raw military power of that empire when deemed necessary. Their project evolved to the point where one small power group, nominally headquartered in Washington in the early years of the new century, stood determined to control future and present life on this planet to a degree never before dreamed of.

The story of the genetic engineering and patenting of plants and other living organisms cannot be understood without looking at the history of the global spread of American power in the decades following World War II. George Kennan, Henry Luce, Averell Harriman and, above all, the four Rockefeller brothers, created the very concept of multinational “agribusiness’ They financed the “Green Revolution” in the agriculture sector of developing countries in order, among other things, to create new markets for petro-chemical fertilizers and petroleum products, as well as to expand dependency on energy products. Their actions are an inseparable part of the story of genetically modified crops today.

By the early years of the new century, it was clear that no more than four giant chemical multinational companies had emerged as global players in the game to control patents on the very basic food products that most people in the world depend on for their daily nutrition-corn, soybeans, rice, wheat, even vegetables and fruits and cotton-as well as new strains of disease-resistant poultry, genetically-modified to allegedly resist the deadly H5N1 Bird Flu virus, or even gene altered pigs and cattle. Three of the four private companies had decades-long ties to Pentagon chemical warfare research. The fourth, nominally Swiss, was in reality Anglo-dominated. As with oil, so was GMO agribusiness very much an Anglo-American global project.” – excerpt from Seeds of Destruction by F.William Engdahl

F.William Engdahl's Superb Book 'Seeds of Destruction'

F.William Engdahl's Superb Book 'Seeds of Destruction'

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A Palliative Nurse’s Observations on the Dying…

Top five regrets of the dying
A nurse has recorded the most common regrets of the dying, and among the top ones is ‘I wish I hadn’t worked so hard’. What would your biggest regret be if this was your last day of life?
There was no mention of more sex or bungee jumps. A palliative nurse who has counselled the dying in their last days has revealed the most common regrets we have at the end of our lives. And among the top, from men in particular, is ‘I wish I hadn’t worked so hard’.
Bronnie Ware is an Australian nurse who spent several years working in palliative care, caring for patients in the last 12 weeks of their lives. She recorded their dying epiphanies in a blog called Inspiration and Chai, which gathered so much attention that she put her observations into a book called The Top Five Regrets of the Dying.
Ware writes of the phenomenal clarity of vision that people gain at the end of their lives, and how we might learn from their wisdom. “When questioned about any regrets they had or anything they would do differently,” she says, “common themes surfaced again and again.”
Here are the top five regrets of the dying, as witnessed by Ware:
1. I wish I’d had the courage to live a life true to myself, not the life others expected of me.
“This was the most common regret of all. When people realise that their life is almost over and look back clearly on it, it is easy to see how many dreams have gone unfulfilled. Most people had not honoured even a half of their dreams and had to die knowing that it was due to choices they had made, or not made. Health brings a freedom very few realise, until they no longer have it.”
2. I wish I hadn’t worked so hard.
“This came from every male patient that I nursed. They missed their children’s youth and their partner’s companionship. Women also spoke of this regret, but as most were from an older generation, many of the female patients had not been breadwinners. All of the men I nursed deeply regretted spending so much of their lives on the treadmill of a work existence.”
3. I wish I’d had the courage to express my feelings.
“Many people suppressed their feelings in order to keep peace with others. As a result, they settled for a mediocre existence and never became who they were truly capable of becoming. Many developed illnesses relating to the bitterness and resentment they carried as a result.”
4. I wish I had stayed in touch with my friends.
“Often they would not truly realise the full benefits of old friends until their dying weeks and it was not always possible to track them down. Many had become so caught up in their own lives that they had let golden friendships slip by over the years. There were many deep regrets about not giving friendships the time and effort that they deserved. Everyone misses their friends when they are dying.”
5. I wish that I had let myself be happier.
“This is a surprisingly common one. Many did not realise until the end that happiness is a choice. They had stayed stuck in old patterns and habits. The so-called ‘comfort’ of familiarity overflowed into their emotions, as well as their physical lives. Fear of change had them pretending to others, and to their selves, that they were content, when deep within, they longed to laugh properly and have silliness in their life again.”
What’s your greatest regret so far, and what will you set out to achieve or change before you die?

 

(reproduced – source unknown)

Acupuncture – The Ins & Outs, No Seriously Just the Facts & Latest Opinion…

Proof That Acupuncture Really Does Activate Specific Parts of the Brain…

Originating in ancient China, acupuncture has been used for 2500 years. Traditional Chinese medicine holds that disease is caused by blockages and imbalances of energy (known as chi) flowing through meridians in the body, and can be eased by inserting needles at specific points.

Since the 1970s, acupuncture has become more popular outside East Asia. Once widely considered a quack medicine, there is now tentative support for its use in certain conditions from respected official bodies such as the World Health Organization, the National Health Service in the UK and the National Institutes of Health in the US.

 

 

There is evidence that acupuncture is effective in treating a range of conditions including spinal injuries, infertility and the side effects of chemotherapy, and that its effects aren’t entirely due to the placebo effect. However, despite extensive research, the mechanism of this ancient healing art remains unknown.

Wenjing Huang of Charité University Medical Centre, Berlin, Germany, and colleagues used more than 100 studies to produce these brain maps of 18 acupuncture points. Areas of the brain activated by stimulating a point are shown in red; areas deactivated are shown in blue.

For example, the two vision-related points GB37 (gall bladder) and UB60 (urinary bladder) showed deactivation in visual brain areas like the cuneus. The team concluded that acupuncture seems to affect the brain’s processing of both physical sensations and thought. For now, though, the source of our chi remains elusive.

Acupuncture has been an essential part of medicine for thousands of years in the East, yet even as it catches on in the West, physicians in this part of the world have yet to figure out exactly how this ancient technique works. Whatever the mechanisms, acupuncture does appear to work. Scientific studies are offering real evidence that it can ease pain and treat ailments ranging from osteoarthritis to migraine headaches.

The technique of acupuncture involves placing hair-thin needles in various pressure points (called acupoints) throughout the body. Stimulating these points is believed to promote the body’s natural healing capabilities and enhance its function.

 

 

East Meets West

Two very different theories exist as to how acupuncture works. According to Chinese philosophy, the body contains two opposing forces: yin and yang. When these forces are in balance, the body is healthy. Energy, called “qi” (pronounced “chee”), flows like rivers along pathways, or meridians, throughout the body. This constant flow of energy keeps the yin and yang balanced. However, the flow of energy can sometimes be blocked, like water getting stuck behind a dam. A disruption in the flow of energy can lead to illness.

Approximately 2,000 different acupuncture points lie along the body’s meridians. The idea behind acupuncture is that stimulating these points with acupuncture needles or pressure relieves obstructions in the flow of energy, enabling the body to heal.

In the Western view, acupuncture likely works by stimulating the central nervous system (the brain and spinal cord) to release chemicals called neurotransmitters and hormones. These chemicals dull pain, boost the immune system and regulate various body functions.

Acupuncture Schools of Thought

Several different types of acupuncture exist, all originating from different parts of the world. In the United States, practitioners most often use the type of acupuncture based on Traditional Chinese Medicine, which restores the natural flow of energy by stimulating pressure points throughout the body that correspond to various organ systems.

Japanese acupuncture is more subtle than its Chinese counterpart. Its needles are thinner and shorter, and they barely pierce the skin. Japanese acupuncture is divided into two forms: root and local. Root acupuncture addresses the total energy imbalance in the body, while local acupuncture treats specific symptoms.

Five Element acupuncture is an ancient Chinese technique used to treat problems of both the body and the mind. It is based on the idea that health, just like everything else in the universe, is governed by the five elements: water, wood, fire, earth, and metal. Restoring a balance of these elements in the body, the theory goes, will result in good health.

Auricular acupuncture was developed in France, and it focuses all of the body’s acupuncture points in just the ear. Two hundred points line the ears, and each point is connected to an area or areas of the body. When a point is stimulated, it creates electrical impulses that flow, via the brain, to a specific part of the body. For example, if the point on the ear that correlates to the knee is stimulated, it will affect pain or symptoms in the knee. Auricular acupuncture is believed to be just as effective as whole body acupuncture, because stimulating the ear is thought to affect chi flow throughout the body.

Korean hand acupuncture is similar to auricular acupuncture, except that the focal point is the hand, rather than the ear. Points on the hand meridians, when stimulated, correspond to various parts of the body.

Acupuncture Styles and Related Techniques

Traditional acupuncture involves placing needles at specific pressure points throughout the body. Several different variations of this technique exist, however. Some practitioners add heat or electrical stimulation to enhance the treatment effects, while others substitute pressure for needles.

Electroacupuncture sends an electrical current through the needles to stimulate pressure points during acupuncture.

Sonopuncture applies sound waves to the acupuncture points. The vibrations stimulate pressure points in a more subtle way than needles. Sonopuncture is often combined with acupuncture.

Acupressure follows the same principle as acupuncture, but it uses pressure rather than needles. The therapist presses on the patient’s acupoints with his or her fingers, and holds for a few seconds.

 

Moxibustion uses heat to stimulate acupoints. The heat is generated by burning an herb called moxa, which comes from the mugwort plant. There are two types of moxibustion: direct and indirect. In direct moxibustion, a piece of the herb about the size of a grain of rice is placed directly on the skin and burned at an acupuncture point. Because this can be painful and can leave scars, many practitioners today opt for indirect moxibustion, in which the piece of moxa is wrapped in paper, lit and held close to the skin. Sometimes moxa is wrapped around the acupuncture needles and lit to add extra stimulation to the acupuncture treatment.

Cupping places heated jars or cups over the skin. Suction pulls the skin into the cups, creating a vacuum-like effect that stimulates the acupuncture points.

What Conditions can Acupuncture Treat?

Acupuncture is used to treat several different medical and psychological conditions, with varying degrees of success. These conditions include:

Addiction

Asthma

Bronchitis (acute)

Cancer pain and nausea control after chemotherapy

Carpal tunnel syndrome

Chest infections

Constipation

Diarrhoea

Headaches (including migraines)

Fibromyalgia

Low-back pain

Menstrual cramps

Osteoarthritis

Post-surgical pain and nausea

Shoulder pain

Sinusitis

Spastic colon

Stress and anxiety

Stroke rehabilitation

Tennis elbow

Urinary problems

Acupuncture can either be used on its own, or combined with traditional medical treatments (such as surgery or medication) or alternative remedies (such as chiropractic manipulation and herbal therapies).

 

(Via Netinfo Medical Sources)

 

PCS Headaches – Are They Worse with Intervention or Better Nourished?

 

One of the most common everyday topics I see people discussing regarding their PCS and MTBI is the agonising subject of the headache! Of course dealing with a headache is a very subjective and personal thing to many folks; some feel the need to measure out the severity of each headache even though there is no official scale suited to categorising just how much of the humdinger the pains in their brain really debilitate them. Headaches range from dull sensations around the lobes to pressure around the eyes and sinuses or even the whole skull can feel like it’s somehow gotten too small to hold the swelling brain inside it.

Of course there are other types of headaches such as migraines, cluster headaches and the type which are more fit–like all electrical in nature (almost epileptic) and these tend to be more closely and often associated with neurological conditions such as PCS, MTBI, TBI, STBI and other types of acquired brain injury. Knowing your own body as we are encouraged to do so daily by society and media has become a massive arena for debate as well as a great moneymaking exercise for everyone from the pharmaceutical industry to manufacturers of healthcare supplements and health gurus and fitness freaks everywhere. In fact you don’t need to look far on the Internet or in glossy magazines for women or men’s health to see that probably 95% or more of what we discussed in health matters is to do with the outer body or its inner workings and very little to do with the brain – it’s very control centre.

So starting with the first category of headache (mild to severe but not crippling) we can identify certain simple and obvious causes even in the case of somebody with PCS/MTBI. Here are the top three culprits which trigger perpetual & repeated headaches…

Number One: Dehydration is probably the biggest single cause of this category of headache and often the most overlooked method to avoid headaches every day is to increase your intake of pure filtered water (ideally between 6 to 10 glasses today) and to decrease or eliminate intake of drinks containing caffeine, high sugar levels, excessive alcohol, additives and artificial colourings and suchlike. Our brains are composed mainly of water so keeping them topped up as much as we keep our bodies topped up with clean water fuel is the healthiest way to avoid headaches. Dehydration is most often identified by discoloured urine anything from a yellow to dark brown colour which indicates lack of hydration. This can be as a result of medication in One’s system – also another reason to increase water intake to ensure it is flushed through properly (the extra trips to the WC are worth it I assure you!)

 

 

Number Two: Getting overstressed & anxious (especially over things which can’t be changed) is the next major and obvious cause of this category of headache. It seems like an obvious one and can often be one of the simplest yet at the same time most complicated causes to get under control if you happen to be suffering from PCS or MTBI. Controlling stress and anxiety can be done through two basic means, through medication or by adopting natural or psychological means. One shepherds the pain into a hole & subdues it until later & the other invites it out to talk & make peace. Medications from opiate painkillers to tranquillisers and certain types of prescription antidepressants are all handed out freely to PCS sufferers and serve deadened the nerve signals whilst bypassing the root cause of any stress related headache, simply offering a quick blissful release to the user. The other way is to work on yourself, your feelings and emotions in simple and effective ways in order to manage stress in your life (I can’t imagine many people having PCS who aren’t familiar to stress even after a few days or weeks) such as control of breathing, taking time out when needed, the daily use of self-hypnosis and NLP, affirmations and a long list of therapeutic and holistic normal means that work towards the root causes of PCS related stress, depression and anxiety.

 

 

Number Three: The overuse of medication is another huge cause of unwanted headaches simply from their very nature most painkillers (especially opiates and synthetic opiates) have a very side-effect of causing additional and increased pain to the user, (especially when used for prolonged periods of time). Along with the other unpleasant side effects of constipation, stomach trouble, acid reflux, diarrhoea, weight gain and mood change pain is the most significant side-effect of the large majority of painkillers! Slowly reducing the intake of prescription painkillers whilst finding natural substitutions for generalised and intensive pain such as headaches can be the best thing you can do towards managing the chronic pain which comes with most long-term PCS/P PCS. Most people can spend years on the same painkiller and become dependent on their effects however relaxation techniques, managing periods of rest in your day and something as simple as a hot bath infused with something like magnesium salts are essential oils of Cypress, Geranium, Black Pepper and others can relieve intense pain within minutes and give effective pain relief for hours and even days afterwards. These methods of pain relief also aid natural and the restful sleep without any side effects. The need for rest is one of our brain’s other most common reasons for headache pain so by not fighting your own nervous system you’ll have increased overall control…

 

 

Now the more serious and aggravating headaches which I mentioned earlier such as migraines and cluster headaches can be controlled mid to long-term by natural means such as hypnotherapy and aromatherapy or holistic means like Reiki or reflexology amongst others, however correctly prescribed pain medication can be worth its weight in gold purely as an emergency measure went is not practical to take time out for holistic therapeutic remedies (such as at work or when travelling etc.). Everything that could be used to fight the root cause of neurological pain signals should be done as sparingly as possible in order that headache can be nourished and eased away rather than habitually blitzed with painkillers every time it appears. The modern way seems to be to treat headaches as some sort of battle enemy that should be shot at every time it rises out of its trench, whereas with most pain management accepting the levels of pain as part of your illness and in fact as a part of yourself during the time that you’re in pain, then you can avoid some of the battle scars and repeated screaming at the heavens that goes with most headaches wondering that age-old question of “oh why, oh why me?”

Relearning your whole set of responses to pain can be very much a trial and error process as the learning of socially acceptable habits such as automatically dosing each of our problems seems to be deeply ingrained within modern consciousness. There is always a temptation to take the convenient hammer to crack a nut; just another reasoned affirmation that everybody else does it so it must be okay for us too!

Being kinder to yourself on the other hand means finding ways to be kinder to the pain too, this may seem contradictory but consider instead that pain signals are our body’s method of communicating to us when something is out of sync or that something is drastically wrong and that we need to attend to it. Pain messages should not be treated like naughty disobedient children banished to a quiet room or locked in a metaphorical cupboard such as in Victorian times, they should be accepted as a measuring–stick of required adjustment for the body needs whether that be lack of hydration, too much stress, over-medication or any other number of problematic things that we can easily suppress during illness.

I suspect that the good majority of you reading this will probably do so and then carry on battling your headaches in the trenches day by day, week to week, month on month and so on lobbing pharmaceutical grenades until something bigger forces a change in your habits or call a truce. Maybe a few of you will take on board what I’ve said about the body-mind relationship and treating pain as a messenger that needs to be noticed and nourished in more subtle ways. Either way if some of the information sticks with you then that’s a good thing I’ve done my job in part. There will be a whole lot more on this issue in my forthcoming book which will act as a comprehensive guide for all matters PCS and MTBI.

 

 

As usual if you have question or comment then please don’t hesitate to get in touch via this site, PCS Awareness Worldwide on Facebook ( https://www.facebook.com/groups/113072042059485/ )  or by email at : pcsawarenessuk@gmail.com   or via following us on  Twitter  @Postconcussion

 

Thanks for reading and Namaste to each of you…

 

Love DB      :o)

 

 

PCS Dizzyness in Society & Healthcare… I want to Get Off!

These days every doctor or physician I talk to will tend to have a very different outlook on the whole matter of PCS, depending on where they live, work and practice they will tell an alarmingly different story. In countries where research is at a premium (such as the USA are Australia) physicians remain positive and informed on all the latest developments and methods of diagnosis and treatment, however in my native UK doctors haven’t even come to terms with the fact that PCS is in fact real! The vast majority don’t know the basics let alone where to send patient who comes to them with all the signs and symptoms of the condition.

In the UK our government claims that over £4 billion is spent on treating brain injury annually, the vast majority of which will be serious TBI, STBI (such as road traffic accidents) and alcohol related head injuries via hospital trauma wards and rehabilitation of comatose and severely disabled cases. PCS is a tiny proportion of this annual £4 billion figure, as our British National Health Service (NHS) openly admits it does not have any treatment plans or pathways for individuals suffering MTBI, neither does the NHS have any plans to introduce treatments or rehabilitation for PCS either! Bad news for Britain’s claim to be one of the most medically and scientifically advanced nations on Earth. It puts to shame these boastful claims in my opinion & a drastic reappraisal is needed regarding the future of treatments for all hidden disability and invisible illness once we’ve taken the first baby steps past stigmatizing all such types of illness through our national media, empathy is at something of an all time low indeed in the 21st century.

 

Now if you are one of the lucky chosen few who happen to be winners in the health services postcode lottery (i.e. you happen to live near one of the few hospitals with a proactive and developed neuropsychology department usually in an affluent area) then you may just get sufficient diagnosis and advice there, you will be one of the lucky ones who gets twice weekly visits to local neurology clinic just because you happen to live near one of the Queen’s Estates or a local high-brow Tory cabinet MP. So far out of the many PCS sufferers that I have spoken to from the UK only a handful of them have had a useful positive experience with neurology specialists, the rest either couldn’t get referred, got lost in the system, gave up or even worse ended up waiting maybe a year post injury to see a specialist only to realise they knew absolutely nothing about MTBI of PCS are that it was too late to instigate any kind of affected recovery!

Although this current picture looks quite bleak for countries like the UK you shouldn’t lose hope just yet. I found through my own persistence and the trial and error involved in the NHS merry-go-round that the best treatments and rehabilitation can be often less troublesome than spending months, and even years on medical waiting lists for specialists who aren’t all which equipped to help anyway. One of the worst things for PCS is stress and if you get caught in the NHS merry-go-round then you will undoubtedly become much stressed very quickly, this is unless you can talk to your doctor or specialist and clearly explain to them that you have to plan for your own recovery (there is nothing an overworked GP loves to hear more than this).

So give me a third way alternative anytime, one which takes into account that I am human & whole & not a piece of meat for the pharmaceutical controlled national health service to shuffle around from one heartbreaking bad referral to another… then & only then can I be free to plot my own path to good health. You can too, its just a choice today between the tried & tired ways versus the new path… See our wellbeing section for more?

Namaste

David B